tag:blogger.com,1999:blog-6167142684357502205.post2347899303847414909..comments2023-05-19T10:11:08.143+01:00Comments on Things Are Never How They Seem: Sometimes, you have no choice but to give up.MadMummyhttp://www.blogger.com/profile/14215041207269658306noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6167142684357502205.post-4057937424429502222012-07-29T13:22:38.317+01:002012-07-29T13:22:38.317+01:00Claire I am so sorry to hear about all of this, th...Claire I am so sorry to hear about all of this, the way you have been treated is horrendous. I don't understand why Rowan has been taken of the DCT - he is still a disabled child.<br /><br />A few other places you might be able to get help, when things have got better and you have some energy to face it: you could try the Citizen's Advice Bureau as they may be able to advise on what support you should have. <br /><br />Also, is there a children's hospice anywhere near you? Not that Rowan or any of your children are going to die or need a hospice in that sense (which is more like adult hospices) but children's hospices can often provide extra support for children with long-term medical conditions, children who have "life-limiting conditions" - I imagine Rowan's complex medical needs limit the quality of his life. A diagnosis is not necessarily required - I worked briefly in a children's hospice, and they supported a chld with no diagnosis.<br /><br />I'm glad your CMHT is on your side at least, and I really hope the rest of the services sort themselves out. Good luck, I'm thinking of you.TTBA(v)JDhttps://www.blogger.com/profile/09403617644754471234noreply@blogger.comtag:blogger.com,1999:blog-6167142684357502205.post-75341580662316434432012-07-26T09:41:23.464+01:002012-07-26T09:41:23.464+01:00I wish I had the words to reassure you, or a magic...I wish I had the words to reassure you, or a magic wand to make it all better. I totally understand how you're feeling right now, and you're so much more honest than me about it, because when I have bad days and weeks I can't even blog about it, I just close down, like you are now. I wish I could say it will get better, when you're in such a shit situation how could it not? and yet without the support you deserve how can you have the time and space you need to recover. I really hope you can get some legal advice or some way to challenge them - I know you don't feel like doing it now but I can't see that they'll do anything without a boot up their collective arses. Thinking of you. Take the time you need and get what support you can, at least CMHT is standing up for you x xSallyhttp://lexilil.wordpress.com/noreply@blogger.com