I realised a few days ago, that no one
really understands the logistics of what happens with Katrina,
Cameron and Ayden when Rowan needs to go to hospital, whether that's
the local hospital, or GOSH. You would assume they'd go to family or
friends, I mean that's what happens with most siblings isn't it? My
situation is a little different however.
Due to circumstances I don't have
family who are able to help out, either through work commitments or
logistics, and actually the vast majority of family would not offer
anyway, due to them just not being part of our lives. The 'other'
side of the children's family either don't know my children, have
never met them, or are not allowed contact with them, which has been
decided by a court. This only leaves friends. I don't have many
friends, in fact, when it comes to needing someone to help out with
the kids the list is pretty much non existent.
So what happens with the kids?
Depending on which hospital Rowan happens to be in, and what days of
the week it is. If it's certain days of the week, I have one friend
who helps out, whether it's sitting with Rowan, or looking after the
other kids, or running to the shops, or whatever will be helpful. If
it's the other days of the week, I am alone. It's hard. Very hard.
If he is in the local hospital, my routine looks a little bit like
this:
6am Get up get the kids ready for
school, including putting dinner in the slow cooker, hoovering,
dealing with the dogs, tidying up, putting a load of washing on,
putting the dishwasher on.
815am Take the kids to school
830am Go to visit Rowan, trying to get
there for 9am and wait for ward round
9am-3pm deal with doctors/nurses/Rowan,
getting him up and dressed and washed, and fed, and entertained,
medicines done, out for ward leave, IV to do, checking his
temperature, cuddling him, comforting him, popping to the shop to top
up supplies, dealing with blood tests and other tests, as well as a
constant influx of calls, texts, and emails about everything, and yet
nothing all at the same time!
3pm leave the hospital to go pick the
kids up from school
430pm arrive back at the hospital after
picking all the children up, nipping home to collect
ipods/tablets/toys/dvds and anything else Rowan has requested.
430pm-6pm entertaining all the kids in
a very small space, getting homework done with them, and reading,
games, watching TV, more meds, more doctors and nurses to deal with,
emptying drainage bags, getting Rowan's Pjs on, teeth brushed,
sorting out what needs to go home, and what needs to stay, tidying up
his cubicle.
6pm-730pm I.V.s and TPN connection to
happen, getting Rowan into bed, and settled for the night, leave him
crying because he wants to come home.
730pm head home with the older 3 kids,
now grumpy and tired!!
8pm- Arrive home dish up dinner, to
find I forgot to buy potatoes/chips/rice/cheese etc. Hunt in the
cupboard to find something to substitute! While getting the kids to
feed the dogs, tidy their rooms up, find their stuff for tomorrow.
830pm Kids eat dinner, put their Pjs
on, and go to bed, then I eat (or not, which is more likely).
9pm Spend time playing with the dogs,
topping up their water bowls, fold the washing out the tumble dryer,
put the wet washing in the dryer, put dirty washing in the washing
machine. Unload and then reload the dishwasher, clear up after
dinner, sort out whatever Rowan sent home or requested for the next
day. Catch up on emails and messages on the answerphone, write a few
emails, open the post.
1030pm Call the hospital to see how
Rowan is.
11pm Go to bed, but now I can't sleep.
12am, the hospital rings, Rowan's TPN
pump won't stop beeping and I have to talk them through step by step
how to shut it up and get it running again after they have done his
I.V.s
1230am, try and sleep.
It's absolute chaos as you can see,
trying to run a house and feed the kids, and keep them all at the
things they need to be at. This is a normal day, on a Wednesday or a
Thursday, it's even more complicated as it's Guides/Beavers/Cubs.
But it needs to be done. The dogs don't get walked, I don't get to
go for a run, I don't get to clean the bathroom/toilet/mop/dust, I
don't get to go food shopping. It's lonely, and isolating, stressful
and exhausting! The few times I have asked people to help me out, I
have either been told no, or people are busy, that they find it hard
to see Rowan poorly, or something else. I understand people have
lives to lead, and sometimes I get really upset that no one will give
me a hand. I may appear that I have it under control, but I am often
falling apart. I often go all day without having eaten anything,
because I just can't get away. When Rowan is really poorly I don't
even get to the parents room to make a coffee as he just wants to be
with me all the time. Sometimes I physically can't eat, the
emotional drain of it all, and the worry of him being poorly, he
never has to stay for something 'simple' as I can do so much of his
care myself, so when he is in hospital, it's serious, and having to
leave my 6 year old in hospital all on his own every single night,
hurts in ways I can't explain. Would you leave your 6 year old alone
in hospital overnight, I mean it's not like a sleepover is it? He's
there because he is very poorly, and the time your child needs you is
when they are poorly and I just can't be there with him, because of
the circumstances. How would that make you feel? What would you do?
If Rowan is in GOSH the whole thing is
completely different. Due to having no one around to help out, after
several years of constant fighting and arguing and failed placements
and complete nightmares, and me having to sort childcare out mid
admission because whoever has the kids can't/won't have them any
more, the social worker at GOSH said enough was enough and she
intervened after I literally had a breakdown mid-admission with the
stress of it all. My older children now go into foster care while I
am at GOSH. I usually have to fight for it for each admission, and
it has to go to panel, and there is a whole process to go through and
usually requires a lot of input from other professionals to justify
the hospital admission. I didn't want this for them, but I have no
choice. Usually they get to meet the foster carers before they go
into care, see where they will be staying, get to see who else lives
in the house, any pets, choose their bed (for the boys), ask any
questions they have, I can talk to the carers about the best way to
manage the kids, and feed them etc. Then when they are in foster
care they can ring/call/facetime (the brilliance of apple products
and wifi!) me as much or as little as they want. The placement is
stable, it's not going to fall through, and while it's usually a
little more complicated than that, arranging time to see them, and
spend time with them during the placement etc. I'm not going to find
myself with nowhere for the children to sleep or stay. So for this
particular admission we had weekend leave, so I picked all my kids
up from school on Friday, Saturday we nipped to the shop, and did a
bbq and did marshmallows and smores, and ice creams, the kids had a
water fight, and watched a film (or went to bed early in Rowan's
case) and had them until Sunday evening, when I returned them to
their foster carers and return to GOSH ready for the second week.
When I say my kids are going into
foster care, it's always assumed it's a bad thing, or a negative
thing, or that something has happened, or that I have done something
wrong. It's not like that, and I wish they would call it something
else rather than foster care, respite care, or something. It's
pretty rare to be in the situation I am in, and therefore lots of the
protocols we have to go through are exactly the same as when they
remove children from parents and that's hard to stomach sometimes.
Then it's a case of making sure the forms are filled out in a way
that reflects the situation, as they just don't work otherwise. For
example, I usually I get letters a few weeks after I have got home
again with dates and times for medicals, which is standard practice
when a child is put into care, and I have to ring up and cancel them,
because my kids are back at home, and they don't need medicals
anyway. There needs to be more awareness and different processes to
go through in this situation, however unusual or rare it is, it still
happens!! It's hard enough having to leave your children with
strangers, even though you know they have been through rigorous
processes, without leaving them with a big 'LOOKED AFTER CHILDREN'
form, that makes you feel inadequate as a parent.
So as I type, Katrina is with one
foster carer, and the boys are with another, and I am at GOSH with
Rowan. It works, in as much as the kids all get a break from each
other, and they are in a stable environment continuing with their
routine and going to school etc. It's hard for them emotionally to
be split up, and not at home, and not with the dogs, nor in their own
beds. I would love to say it gets easier each time, but it doesn't.
This is one of those things that happens when there is a practically
non-existent support network. We get through it, but it's not one of
my favourite things that's for sure, and it usually ends up with me
making myself ill! That and the kids are all over the place
emotionally, one has meltdowns, one cries all the time, and the other
gets super hyperactive!
I guess the point of this post was to
give you all a little insight into how absolutely chaotic life can be
with a child who needs frequent medical attention and hospital stays.
Especially as a single parent. Especially with a minimal support
network. My advice to you would be, if you know someone in a similar
situation, don't assume they have it under control. Just because it
happens regularly, does not mean it's easy, or organised. Offer to
help, whether it's school runs, bringing dinner, bit of childcare,
visiting the hospital, bringing lunch, magazines or coffee, offering
to walk the dog, or have the kids for a sleepover. I can tell you
now, someone in the situation I am in, would be more grateful than
you can ever imagine. That person would also often be the first one
to offer you help if you were in need of it. Friendship is a two way
street, sometimes it's hard for people to ask for help, and there are
only so many times they are willing to ask and be told no before they
start believing no one cares. Don't just say you care, when there is
a crisis and help is needed, show that you care.
Claire, you are an amazing woman and mother to your 4 children. Your post made me feel sad that you have such a hard time when Rowan is poorly, I do hope that others that read your blog, will realise that it is THEM that can offer you just a few hours help which to you is priceless and to them just a few hours.
ReplyDeletePeople that know Claire: Don't leave it to others !!! Yes it's YOU that can help her, thats not asking for too much is it.?